In this issue of Other Worlds, Pernilla Manjula Philip reflects on the various practices of care revolving around her illness. A complex scenario emerges: the safety procedures regulated by the official healthcare system limit the well-being allowed by do-it-yourself technologies developed by independent communities of makers. The approach of these makers is, in turn, often too technical and masculine to include most users. With her artistic work, Pernilla mobilizes empathy to counterbalance this state of affairs.
I did not care that much about the medical-industrial complex before I found myself in a hospital trying to wrap my head around the fact that I will never leave again. I would eventually go home, but I would bring my diagnosis with me. And with that, bring the hospital along. My brand-new illness has attached me to a world of care that I will always depend on. A lifetime of needing care.